I knew I hadn't been here in a while, I just didn't realize how long!
I keep composing entries in my head, then never actually posting them.
I'll try to get them on "paper" this week.
Flo
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I started this blog to share my medical status and progress with my friends, but it has grown to include much more. Want just the medical updates? Use the label index, bottom right, to select "CLL." Want details of my recent hospitalization and return home? Check out the new blogs, to the right.
AzLady2's Blog List
Eating crow.... (1/20/09)
How quickly things change! In the three weeks -- to the day! -- since announcing that I was not ready for chemo, I have become very, very sick, been admitted, received chemo, had all sorts of new experiences and am now in the process of getting ready to return home.
When my oncologist told me that I would need to receive my first treatment as an inpatient, she estimated a four to five day stay. When I was admitted she estimated a week. Her senior partner said if I were his patient to expect a month. It has now been eleven days. While the end is not in sight, things are looking much better, and I've begun physical and other therapy that will make the transition easier.
My internet access is made possible by http://www.theblf.org/, a foundation which has made computers available for the use of patients with long term stays. These lightweight notebooks use the hospital wi-fi network. The security is preset, which would not be possible if each patient connected individually. I can keep this with me until I am released or until another patient needs it. (There are three units; they are rotated among the long term patients.) Getting online this afternoon has made a huge difference in my outlook. I am indeed grateful for the opportunity.
Also, it is far easier for me to type than to either speak or write, so I will be using this blog or email for most of my communication.
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Most of you reaching this page know that I was diagnosed with Chronic Lymphocytic Leukemia in June 2007. After six months of relatively stable lab results my numbers started climbing rapidly.
As of 12/30/08 the increase is still accelerating. My doctor seems to believe that one day I'll wake up very, very sick, and treatment will become urgent.
She would have been happy if I started chemo months ago. Not yet.
When my oncologist told me that I would need to receive my first treatment as an inpatient, she estimated a four to five day stay. When I was admitted she estimated a week. Her senior partner said if I were his patient to expect a month. It has now been eleven days. While the end is not in sight, things are looking much better, and I've begun physical and other therapy that will make the transition easier.
My internet access is made possible by http://www.theblf.org/, a foundation which has made computers available for the use of patients with long term stays. These lightweight notebooks use the hospital wi-fi network. The security is preset, which would not be possible if each patient connected individually. I can keep this with me until I am released or until another patient needs it. (There are three units; they are rotated among the long term patients.) Getting online this afternoon has made a huge difference in my outlook. I am indeed grateful for the opportunity.
Also, it is far easier for me to type than to either speak or write, so I will be using this blog or email for most of my communication.
-------------------------------------
Most of you reaching this page know that I was diagnosed with Chronic Lymphocytic Leukemia in June 2007. After six months of relatively stable lab results my numbers started climbing rapidly.
As of 12/30/08 the increase is still accelerating. My doctor seems to believe that one day I'll wake up very, very sick, and treatment will become urgent.
She would have been happy if I started chemo months ago. Not yet.
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